MIO's World


We can live with a disease.
Maybe, live a deeper life.


Hi ! I'm MIO.
I'm a middle-aged Japanese woman dermatologist
who is suffering from severe Atopic Dermatitis(AD) myself.
I 've been conflicting to AD since I was a child, but I could
study and work almost as usual till my AD burst out in 1994.
The aggravation was very hard to me because it prevented me
from work, going out, and other basis of social life.
But I didn't accept any steroids(or tacrolimus) therapy
in accordance with my beliefs and slowly improving.
I will tell you my course so far and my ideas about AD.
Join me now!

Now at last I have recovered and restarted to work as a dermatologist in 2006
then opened a clinic of alternative medicine(chiropractic/NAET).
Details of my clinic are here(via PC) and here(via mobile phone).

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**INDEX**

Introduction

My History of AD
  preface: SINCE MY BIRTH
   chapter1:  BURST OF SYMPTOMS
    chapter2: HOT SPRING CURE
     chapter3: ERYTHRODERMA
      chapter4: THE BADDEST TIME
       chapter5: GRADUAL IMPROVEMENT
      chapter6: UNEXPECTED COMPLICATIONS
     chapter7: GOING OUT
    chapter8: HOUSEKEEPING
   chapter9: ABLE TO GO TO TOKYO
  chapter10: TO VARIOUS PLACES
   chapter11: MY THOUGHT, AND INTO THE NEXT PHASE
    chapter12: TO GET UP EARLY
     chapter13: BACK TO NORMAL SKIN COLOR

My Thoughts and Feelings to AD
  CONDITION OF AD STEROIDS THERAPY IN JAPAN  
   PREREQUISITE FOR QUITING STEROIDS  
    A LAWSUIT ABOUT AD TREATMENT1  
     A MIRACLE DRUG  
      ORDEAL  
     LEAVE ME ALONE  
   MENTAL PREPARATION  
 SUMMER FESTIVAL IN TRADITIONAL CLOTHES(YUKATA)
  NATURAL LIMIT OF TOPICAL STEROID THERAPY
   ARE STEROIDS FEARFUL DRUGS?
    ENDLESS ITCH
     LIFE INSTRUCTIONS WITHOUT STEROIDS
      CRYSTAL HEART
       SICK ONE'S WAY
      MELANCHOLY OF AD RECRUITS
     EXCESS SUPPLY OF EMOLLIENTS
   A CREDIBILITY GAP BETWEEN DR.S AND AD PATIENTS
  HOW WIDE IS THE POSSIBILITY HUMAN CURE DISEASES?
   MEDICINE OR POISON?
    LIVE IN THE DARKNESS
     ATOPY SAD SONG
      JDA WON'T ALLOW THROUING OUT STEROIDS
       TRICK OR TREATMENT?
      OLD AD PATIENTS ARE INCREASING

Essays on various themes
    SPELL FOR HAPPINESS
   WITH BEST WISHES, TO PRINCESS MASAKO
  ENCOURAGING ASASYORYU/DEFENDING ASASYORYU
 /DISCUSSION ABOUT ASASYORYU ISSUE IN BBS
   THE BENEFIT OF TEARS

Bulletin Board (BBS)
 How To Write & See BBS 
 Thank you for your visiting.
 Please give me your comments if you like.
(Sorry, previous comments of visitors are in Japanese.)

EMail to MIO
   tttmioworld@jcom.home.ne.jp
 This email address contains surplus letters
 against spam mails.
 Please omit "ttt" when you send me your email.



Introduction

AD is so polyetiological, chronic and unmeasurable that it is very difficult to prove scientifically the involvement of every factor. Under such situation, I think experiences of AD patients should be regarded as of more value as a clue to find possible aggravating factors which may lead us to preventive measures, effective therapies, or elucidation of the disease mechanisms. Personal courses of AD patients may contains piles of hints for improvement. That's why I show you my course here.

Severe AD patients are increasing and suffering day by day nevertheless all present medical therapies, urging some new effective therapy under unbearable bad condition.

Topical corticosteroids are the standard in AD therapy in Japan.("Guidelines for Therapy for AD 2003" by Japanese Dermatological Association recommends.)
Steroids, tacrolimus as well, have very strong immunosuppressive effect and often dramatically improve the symptoms of AD patients. But it does not cure AD; merely beat out symptoms.
In the long run, it may turn to be less effective, or may cause adverse effects like dependency, immunosuppression, and risks of withdrawal aggravation.

Oral antihistamine is another standard of AD, but even that medicine is described not to be preferable to allergy by Dr. Andrew Weil in his book "Natural Health, Natural medicine"(Japanese edition). Suppressive medicines disturb spontaneous healing and may rather deteriorate the course.

Authoritative Japanese dermatologists put emphasis on the validity of steroids and tacrolimus, do not approve any other therapies(Chinese medicine is an exception), and label all of them to be quackery. For them AD patients who disagree this opinion are mere groundless "steroid-phobia".

So AD patients who intend to spontaneous healing or prefer mild therapies often cannot help avoiding dermatologist to make a try at alternative therapy alone.

I think the dermatologists' outlook is too narrow.
Patients can show them that they can heal without strong invasive therapy, and I wish to be one of such patient.




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